# International Collaborative Gaucher Group (ICGG) Gaucher Disease Registry & Pregnancy Sub-registry

> **NCT00358943** · — · RECRUITING · sponsor: **Genzyme, a Sanofi Company** · enrollment: 12000 (estimated)

## Conditions studied

- Gaucher Disease
- Cerebroside Lipidosis Syndrome
- Glucocerebrosidase Deficiency Disease
- Glucosylceramide Beta-Glucosidase Deficiency Disease

## Interventions

_None listed._

## Key facts

- **NCT ID:** NCT00358943
- **Lead sponsor:** Genzyme, a Sanofi Company
- **Sponsor class:** INDUSTRY
- **Phase:** —
- **Study type:** OBSERVATIONAL
- **Status:** RECRUITING
- **Start date:** 1991-04-01
- **Primary completion:** 2034-01-31
- **Final completion:** 2034-01-31
- **Target enrollment:** 12000 (ESTIMATED)
- **Last updated:** 2026-04-14


## Primary source

ClinicalTrials.gov registry: https://clinicaltrials.gov/study/NCT00358943

## Citation

> US National Library of Medicine, ClinicalTrials.gov registration NCT00358943, "International Collaborative Gaucher Group (ICGG) Gaucher Disease Registry & Pregnancy Sub-registry". Retrieved via AI Analytics 2026-07-20 from https://api.ai-analytics.org/clinical/NCT00358943. Licensed CC0.

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*[Clinical trials dataset](/datasets/clinical-trials) · CC0 1.0*