# Study of Quality of Life in Freeman-Sheldon Syndrome and Related Conditions

> **NCT01307475** · — · TERMINATED · sponsor: **Freeman-Sheldon Research Group, Inc.** · enrollment: 6 (actual)

## Conditions studied

- Arthrogryposis
- Craniofacial Abnormalities
- Posttraumatic Stress Disorder
- Depressive Disorder

## Interventions

- **OTHER:** PTSD Checklist-Specific
- **OTHER:** Modified Flanagan Quality of Life Scale
- **OTHER:** Center for Epidemiologic Studies Depression Scale
- **OTHER:** Functional Enquiry Form
- **OTHER:** Strength, Joint ROM, Girth and Length Measurements
- **OTHER:** Study Physical Examination
- **OTHER:** PTSD, Depression, and FSS-Focused Examination
- **OTHER:** Freeman-Sheldon Specific Quality of Life Survey
- **OTHER:** Lactate, Glucose, and Adenosine Triphosphate Blood Levels

## Key facts

- **NCT ID:** NCT01307475
- **Lead sponsor:** Freeman-Sheldon Research Group, Inc.
- **Sponsor class:** OTHER
- **Phase:** —
- **Study type:** OBSERVATIONAL
- **Status:** TERMINATED
- **Start date:** 2011-02
- **Primary completion:** 2017-04-01
- **Final completion:** 2017-04-01
- **Target enrollment:** 6 (ACTUAL)
- **Why stopped:** Most study procedures incorporated into NCT01144741, some in NCT01306994
- **Last updated:** 2017-04-04


## Primary source

ClinicalTrials.gov registry: https://clinicaltrials.gov/study/NCT01307475

## Citation

> US National Library of Medicine, ClinicalTrials.gov registration NCT01307475, "Study of Quality of Life in Freeman-Sheldon Syndrome and Related Conditions". Retrieved via AI Analytics 2026-06-24 from https://api.ai-analytics.org/clinical/NCT01307475. Licensed CC0.

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