# ARPKD Database Study

> **NCT01401998** · — · RECRUITING · sponsor: **Children's Hospital of Philadelphia** · enrollment: 200 (estimated)

## Conditions studied

- Hepato/Renal Fibrocystic Disease
- Autosomal Recessive Polycystic Kidney Disease
- Joubert Syndrome
- Bardet Biedl Syndrome
- Meckel-Gruber Syndrome
- Congenital Hepatic Fibrosis
- Caroli Syndrome
- Oro-Facial-Digital Syndrome Type I
- Nephronophthisis
- Glomerulocystic Kidney Disease

## Interventions

_None listed._

## Key facts

- **NCT ID:** NCT01401998
- **Lead sponsor:** Children's Hospital of Philadelphia
- **Sponsor class:** OTHER
- **Phase:** —
- **Study type:** OBSERVATIONAL
- **Status:** RECRUITING
- **Start date:** 2011-06
- **Primary completion:** 2030-09
- **Final completion:** 2030-12
- **Target enrollment:** 200 (ESTIMATED)
- **Last updated:** 2025-06-13

## Collaborators

- [object Object]

## Primary source

ClinicalTrials.gov registry: https://clinicaltrials.gov/study/NCT01401998

## Citation

> US National Library of Medicine, ClinicalTrials.gov registration NCT01401998, "ARPKD Database Study". Retrieved via AI Analytics 2026-06-15 from https://api.ai-analytics.org/clinical/NCT01401998. Licensed CC0.

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