# A Multicenter Collaborative Study on the Clinical Features, Expression Profiling, and Quality of Life of Infantile Onset FSHD

> **NCT01437345** · — · COMPLETED · sponsor: **Cooperative International Neuromuscular Research Group** · enrollment: 53 (actual)

## Conditions studied

- Facioscapulohumeral Muscular Dystrophy

## Interventions

_None listed._

## Key facts

- **NCT ID:** NCT01437345
- **Lead sponsor:** Cooperative International Neuromuscular Research Group
- **Sponsor class:** NETWORK
- **Phase:** —
- **Study type:** OBSERVATIONAL
- **Status:** COMPLETED
- **Start date:** 2012-07
- **Primary completion:** 2017-08
- **Final completion:** 2017-08
- **Target enrollment:** 53 (ACTUAL)
- **Last updated:** 2017-10-11

## Collaborators

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## Primary source

ClinicalTrials.gov registry: https://clinicaltrials.gov/study/NCT01437345

## Citation

> US National Library of Medicine, ClinicalTrials.gov registration NCT01437345, "A Multicenter Collaborative Study on the Clinical Features, Expression Profiling, and Quality of Life of Infantile Onset FSHD". Retrieved via AI Analytics 2026-05-27 from https://api.ai-analytics.org/clinical/NCT01437345. Licensed CC0.

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*[Clinical trials dataset](/datasets/clinical-trials) · CC0 1.0*