# Lymphatic Anomalies Registry for the Assessment of Outcome Data

> **NCT02399527** · — · RECRUITING · sponsor: **Boston Children's Hospital** · enrollment: 1000 (estimated)

## Conditions studied

- Lymphatic Malformation
- Generalized Lymphatic Anomaly (GLA)
- Central Conducting Lymphatic Anomaly
- CLOVES Syndrome
- Gorham-Stout Disease ("Disappearing Bone Disease")
- Blue Rubber Bleb Nevus Syndrome
- Kaposiform Lymphangiomatosis
- Kaposiform Hemangioendothelioma/Tufted Angioma
- Klippel-Trenaunay Syndrome
- Lymphangiomatosis

## Interventions

_None listed._

## Key facts

- **NCT ID:** NCT02399527
- **Lead sponsor:** Boston Children's Hospital
- **Sponsor class:** OTHER
- **Phase:** —
- **Study type:** OBSERVATIONAL
- **Status:** RECRUITING
- **Start date:** 2013-06
- **Primary completion:** 2035-06
- **Final completion:** 2035-06
- **Target enrollment:** 1000 (ESTIMATED)
- **Last updated:** 2026-04-24

## Collaborators

- [object Object]

## Primary source

ClinicalTrials.gov registry: https://clinicaltrials.gov/study/NCT02399527

## Citation

> US National Library of Medicine, ClinicalTrials.gov registration NCT02399527, "Lymphatic Anomalies Registry for the Assessment of Outcome Data". Retrieved via AI Analytics 2026-07-18 from https://api.ai-analytics.org/clinical/NCT02399527. Licensed CC0.

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