# Inherited Retinal Degenerative Disease Registry

> **NCT02435940** · — · RECRUITING · sponsor: **Foundation Fighting Blindness** · enrollment: 20000 (estimated)

## Conditions studied

- Eye Diseases Hereditary
- Retinal Disease
- Achromatopsia
- Bardet-Biedl Syndrome
- Bassen-Kornzweig Syndrome
- Batten Disease
- Best Disease
- Choroidal Dystrophy
- Choroideremia
- Cone Dystrophy
- Cone-Rod Dystrophy
- Congenital Stationary Night Blindness
- Enhanced S-Cone Syndrome
- Fundus Albipunctatus
- Goldmann-Favre Syndrome
- Gyrate Atrophy
- Juvenile Macular Degeneration
- Kearns-Sayre Syndrome
- Leber Congenital Amaurosis
- Refsum Syndrome
- Retinitis Pigmentosa
- Retinitis Punctata Albescens
- Retinoschisis
- Rod-Cone Dystrophy
- Rod Dystrophy
- Rod Monochromacy
- Stargardt Disease
- Usher Syndrome

## Interventions

_None listed._

## Key facts

- **NCT ID:** NCT02435940
- **Lead sponsor:** Foundation Fighting Blindness
- **Sponsor class:** OTHER
- **Phase:** —
- **Study type:** OBSERVATIONAL
- **Status:** RECRUITING
- **Start date:** 2014-06
- **Primary completion:** 2037-06
- **Final completion:** 2037-06
- **Target enrollment:** 20000 (ESTIMATED)
- **Last updated:** 2025-03-27


## Primary source

ClinicalTrials.gov registry: https://clinicaltrials.gov/study/NCT02435940

## Citation

> US National Library of Medicine, ClinicalTrials.gov registration NCT02435940, "Inherited Retinal Degenerative Disease Registry". Retrieved via AI Analytics 2026-05-28 from https://api.ai-analytics.org/clinical/NCT02435940. Licensed CC0.

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