# Development and Validation of Patient Reported Outcome (PRO) Measures for Individuals With Neurofibromatosis 1 (NF1) and Plexiform Neurofibromas (pNFs)

> **NCT02544022** · — · RECRUITING · sponsor: **National Cancer Institute (NCI)** · enrollment: 476 (estimated)

## Conditions studied

- Neurofibromatosis 1
- Plexiform Neurofibromas

## Interventions

_None listed._

## Key facts

- **NCT ID:** NCT02544022
- **Lead sponsor:** National Cancer Institute (NCI)
- **Sponsor class:** NIH
- **Phase:** —
- **Study type:** OBSERVATIONAL
- **Status:** RECRUITING
- **Start date:** 2015-11-13
- **Primary completion:** 2026-06-30
- **Final completion:** 2026-12-31
- **Target enrollment:** 476 (ESTIMATED)
- **Last updated:** 2026-04-24


## Primary source

ClinicalTrials.gov registry: https://clinicaltrials.gov/study/NCT02544022

## Citation

> US National Library of Medicine, ClinicalTrials.gov registration NCT02544022, "Development and Validation of Patient Reported Outcome (PRO) Measures for Individuals With Neurofibromatosis 1 (NF1) and Plexiform Neurofibromas (pNFs)". Retrieved via AI Analytics 2026-05-28 from https://api.ai-analytics.org/clinical/NCT02544022. Licensed CC0.

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