# International Congenital Central Hypoventilation Syndrome (CCHS) Registry and CCHS SHARE

> **NCT03088020** · — · RECRUITING · sponsor: **Debra Weese-Mayer** · enrollment: 1000 (estimated)

## Conditions studied

- Congenital Central Hypoventilation Syndrome

## Interventions

_None listed._

## Key facts

- **NCT ID:** NCT03088020
- **Lead sponsor:** Debra Weese-Mayer
- **Sponsor class:** OTHER
- **Phase:** —
- **Study type:** OBSERVATIONAL
- **Status:** RECRUITING
- **Start date:** 2013-06-24
- **Primary completion:** 2031-12-31
- **Final completion:** 2032-12-31
- **Target enrollment:** 1000 (ESTIMATED)
- **Last updated:** 2024-08-09

## Collaborators

- [object Object]
- [object Object]

## Primary source

ClinicalTrials.gov registry: https://clinicaltrials.gov/study/NCT03088020

## Citation

> US National Library of Medicine, ClinicalTrials.gov registration NCT03088020, "International Congenital Central Hypoventilation Syndrome (CCHS) Registry and CCHS SHARE". Retrieved via AI Analytics 2026-06-02 from https://api.ai-analytics.org/clinical/NCT03088020. Licensed CC0.

---

*[Clinical trials dataset](/datasets/clinical-trials) · CC0 1.0*