# The International Registry for Leigh Syndrome

> **NCT03137355** · — · RECRUITING · sponsor: **The University of Texas Health Science Center, Houston** · enrollment: 200 (estimated)

## Conditions studied

- Leigh Syndrome
- Leigh Disease
- Leigh's Necrotizing Encephalopathy
- Subacute Necrotizing Encephalomyopathy
- Subacute Necrotizing Encephalomyelopathy

## Interventions

_None listed._

## Key facts

- **NCT ID:** NCT03137355
- **Lead sponsor:** The University of Texas Health Science Center, Houston
- **Sponsor class:** OTHER
- **Phase:** —
- **Study type:** OBSERVATIONAL
- **Status:** RECRUITING
- **Start date:** 2015-06-17
- **Primary completion:** 2030-06-17
- **Final completion:** 2030-06-17
- **Target enrollment:** 200 (ESTIMATED)
- **Last updated:** 2023-12-01


## Primary source

ClinicalTrials.gov registry: https://clinicaltrials.gov/study/NCT03137355

## Citation

> US National Library of Medicine, ClinicalTrials.gov registration NCT03137355, "The International Registry for Leigh Syndrome". Retrieved via AI Analytics 2026-05-25 from https://api.ai-analytics.org/clinical/NCT03137355. Licensed CC0.

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