# Neurocognition in Congenital Central Hypoventilation Syndrome (CCHS)

> **NCT03568669** · — · RECRUITING · sponsor: **Debra Weese-Mayer** · enrollment: 1000 (estimated)

## Conditions studied

- Congenital Central Hypoventilation Syndrome
- Congenital Central Hypoventilation
- CCHS
- CCHS With Hirschsprung Disease
- CCHS With Neural Crest Tumor
- CCHS With Neuroblastoma

## Interventions

- **OTHER:** NIH Toolbox Cognition Battery

## Key facts

- **NCT ID:** NCT03568669
- **Lead sponsor:** Debra Weese-Mayer
- **Sponsor class:** OTHER
- **Phase:** —
- **Study type:** OBSERVATIONAL
- **Status:** RECRUITING
- **Start date:** 2016-01
- **Primary completion:** 2030-12
- **Final completion:** 2035-12
- **Target enrollment:** 1000 (ESTIMATED)
- **Last updated:** 2024-08-09

## Collaborators

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## Primary source

ClinicalTrials.gov registry: https://clinicaltrials.gov/study/NCT03568669

## Citation

> US National Library of Medicine, ClinicalTrials.gov registration NCT03568669, "Neurocognition in Congenital Central Hypoventilation Syndrome (CCHS)". Retrieved via AI Analytics 2026-06-02 from https://api.ai-analytics.org/clinical/NCT03568669. Licensed CC0.

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