# Global FKRP Registry

> **NCT04001595** · — · UNKNOWN · sponsor: **Newcastle University** · enrollment: 1000 (estimated)

## Conditions studied

- LGMD2I
- LGMDR9
- Limb Girdle Muscular Dystrophy
- Congenital Muscular Dystrophy
- Muscle-Eye-Brain Disease
- Walker-Warburg Syndrome
- FKRP Gene Mutation

## Interventions

- **OTHER:** Patient Registry

## Key facts

- **NCT ID:** NCT04001595
- **Lead sponsor:** Newcastle University
- **Sponsor class:** OTHER
- **Phase:** —
- **Study type:** OBSERVATIONAL
- **Status:** UNKNOWN
- **Start date:** 2013-11
- **Primary completion:** 2025-12
- **Final completion:** 2025-12
- **Target enrollment:** 1000 (ESTIMATED)
- **Last updated:** 2024-01-30

## Collaborators

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- [object Object]
- [object Object]

## Primary source

ClinicalTrials.gov registry: https://clinicaltrials.gov/study/NCT04001595

## Citation

> US National Library of Medicine, ClinicalTrials.gov registration NCT04001595, "Global FKRP Registry". Retrieved via AI Analytics 2026-06-22 from https://api.ai-analytics.org/clinical/NCT04001595. Licensed CC0.

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