# International GNE Myopathy Patient Registry

> **NCT04009226** · — · UNKNOWN · sponsor: **Newcastle University** · enrollment: 430 (estimated)

## Conditions studied

- GNE Myopathy
- Hereditary Inclusion Body Myopathy

## Interventions

- **OTHER:** Patient Registry

## Key facts

- **NCT ID:** NCT04009226
- **Lead sponsor:** Newcastle University
- **Sponsor class:** OTHER
- **Phase:** —
- **Study type:** OBSERVATIONAL
- **Status:** UNKNOWN
- **Start date:** 2014-03
- **Primary completion:** 2021-12
- **Final completion:** 2021-12
- **Target enrollment:** 430 (ESTIMATED)
- **Last updated:** 2020-10-06


## Primary source

ClinicalTrials.gov registry: https://clinicaltrials.gov/study/NCT04009226

## Citation

> US National Library of Medicine, ClinicalTrials.gov registration NCT04009226, "International GNE Myopathy Patient Registry". Retrieved via AI Analytics 2026-06-01 from https://api.ai-analytics.org/clinical/NCT04009226. Licensed CC0.

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