Global Registry for COL6-related Dystrophies

Conditions

• Bethlem Myopathy
• Ullrich Congenital Muscular Dystrophy 1, Digenic, Col6A1/Col6A2
• Ullrich Congenital Muscular Dystrophy 1, Autosomal Recessive
• Ullrich Congenital Muscular Dystrophy 1, Autosomal Dominant
• Bethlem Myopathy 1, Autosomal Recessive
• UCMD
• BTHLM1

Interventions

• OTHER: Patient Registry

Sponsor

Newcastle-upon-Tyne Hospitals NHS Trust