The Burden of Primary Caregivers of Spinal Muscular Atrophy Patients and Their Needs
Conditions
- Spinal Muscular Atrophy
- Caregiver Burden
Interventions
- BEHAVIORAL: Zarit Burden Interview Scale
- BEHAVIORAL: Family Needs Survey (FNS)
- OTHER: Children's Hospital of Philadelphia Infant Test of Neuromuscular Disorders (CHOP INTEND)
- OTHER: Hammersmith Functional Motor Scale Expanded (HMFSE)
Sponsor
Marmara University