# Children Affected by Rare Disease and Their Families Network

> **NCT04339465** · NA · UNKNOWN · sponsor: **Silke Wiegand-Grefe, Prof. Dr.** · enrollment: 687 (actual)

## Conditions studied

- Rare Diseases

## Interventions

- **BEHAVIORAL:** CARE-FAM
- **BEHAVIORAL:** WEP-CARE

## Key facts

- **NCT ID:** NCT04339465
- **Lead sponsor:** Silke Wiegand-Grefe, Prof. Dr.
- **Sponsor class:** OTHER
- **Phase:** NA
- **Study type:** INTERVENTIONAL
- **Status:** UNKNOWN
- **Start date:** 2019-01-01
- **Primary completion:** 2022-09-30
- **Final completion:** 2022-12-31
- **Target enrollment:** 687 (ACTUAL)
- **Last updated:** 2022-09-16

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## Primary source

ClinicalTrials.gov registry: https://clinicaltrials.gov/study/NCT04339465

## Citation

> US National Library of Medicine, ClinicalTrials.gov registration NCT04339465, "Children Affected by Rare Disease and Their Families Network". Retrieved via AI Analytics 2026-05-27 from https://api.ai-analytics.org/clinical/NCT04339465. Licensed CC0.

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