# Impact of Complex Care Training of Hereditary Epidermolysis Bullosa on Caregiver Burden (FIREB)

> **NCT05248503** · — · COMPLETED · sponsor: **Assistance Publique - Hôpitaux de Paris** · enrollment: 19 (actual)

## Conditions studied

- Hereditary Epidermolysis Bullosa

## Interventions

- **BEHAVIORAL:** Complex Care Training of Hereditary Epidermolysis Bullosa

## Key facts

- **NCT ID:** NCT05248503
- **Lead sponsor:** Assistance Publique - Hôpitaux de Paris
- **Sponsor class:** OTHER
- **Phase:** —
- **Study type:** OBSERVATIONAL
- **Status:** COMPLETED
- **Start date:** 2023-06-01
- **Primary completion:** 2023-11-15
- **Final completion:** 2025-05-20
- **Target enrollment:** 19 (ACTUAL)
- **Last updated:** 2026-05-06

## Collaborators

- URC-CIC Paris Descartes Necker Cochin

## Primary source

ClinicalTrials.gov registry: https://clinicaltrials.gov/study/NCT05248503

## Citation

> US National Library of Medicine, ClinicalTrials.gov registration NCT05248503, "Impact of Complex Care Training of Hereditary Epidermolysis Bullosa on Caregiver Burden (FIREB)". Retrieved via AI Analytics 2026-05-28 from https://api.ai-analytics.org/clinical/NCT05248503. Licensed CC0.

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