# Empowering Adolescents and Young Adults With Sickle Cell Disease as Partners in Treatment Decision Making (EMPOWER-AYA)

> **NCT05383911** · NA · RECRUITING · sponsor: **Nemours Children's Clinic** · enrollment: 68 (estimated)

## Conditions studied

- Sickle Cell Disease

## Interventions

- **BEHAVIORAL:** SCD Shared Decision-Making Toolkit for AYAs - including VR
- **BEHAVIORAL:** SCD Shared Decision-Making Toolkit for AYAs - without VR

## Key facts

- **NCT ID:** NCT05383911
- **Lead sponsor:** Nemours Children's Clinic
- **Sponsor class:** OTHER
- **Phase:** NA
- **Study type:** INTERVENTIONAL
- **Status:** RECRUITING
- **Start date:** 2024-11-26
- **Primary completion:** 2026-06-30
- **Final completion:** 2026-12-31
- **Target enrollment:** 68 (ESTIMATED)
- **Last updated:** 2026-04-22


## Primary source

ClinicalTrials.gov registry: https://clinicaltrials.gov/study/NCT05383911

## Citation

> US National Library of Medicine, ClinicalTrials.gov registration NCT05383911, "Empowering Adolescents and Young Adults With Sickle Cell Disease as Partners in Treatment Decision Making (EMPOWER-AYA)". Retrieved via AI Analytics 2026-07-01 from https://api.ai-analytics.org/clinical/NCT05383911. Licensed CC0.

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