# ADVANCED FSHD-COM: New Clinical Outcome Measures to Evaluate Non-ambulant FSHD Patients, a Pilot Study

> **NCT05453461** · NA · ACTIVE_NOT_RECRUITING · sponsor: **Centre Hospitalier Universitaire de Nice** · enrollment: 30 (actual)

## Conditions studied

- Facioscapulohumeral Muscular Dystrophy

## Interventions

- **DIAGNOSTIC_TEST:** Validation of new COMs for non ambulant FSHD patients

## Key facts

- **NCT ID:** NCT05453461
- **Lead sponsor:** Centre Hospitalier Universitaire de Nice
- **Sponsor class:** OTHER
- **Phase:** NA
- **Study type:** INTERVENTIONAL
- **Status:** ACTIVE_NOT_RECRUITING
- **Start date:** 2023-04-03
- **Primary completion:** 2027-04
- **Final completion:** 2027-04
- **Target enrollment:** 30 (ACTUAL)
- **Last updated:** 2025-09-25


## Primary source

ClinicalTrials.gov registry: https://clinicaltrials.gov/study/NCT05453461

## Citation

> US National Library of Medicine, ClinicalTrials.gov registration NCT05453461, "ADVANCED FSHD-COM: New Clinical Outcome Measures to Evaluate Non-ambulant FSHD Patients, a Pilot Study". Retrieved via AI Analytics 2026-06-25 from https://api.ai-analytics.org/clinical/NCT05453461. Licensed CC0.

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