# Natural History Study of Cutaneous Neurofibromas in People With NF1

> **NCT05581511** · — · ACTIVE_NOT_RECRUITING · sponsor: **Johns Hopkins University** · enrollment: 500 (estimated)

## Conditions studied

- Neurofibromatosis Type 1
- Neurofibromatosis 1
- Neurofibromatosis (Nonmalignant)
- Cutaneous Neurofibroma

## Interventions

- **OTHER:** Evaluation of the natural history of cutaneous neurofibromas

## Key facts

- **NCT ID:** NCT05581511
- **Lead sponsor:** Johns Hopkins University
- **Sponsor class:** OTHER
- **Phase:** —
- **Study type:** OBSERVATIONAL
- **Status:** ACTIVE_NOT_RECRUITING
- **Start date:** 2021-06-28
- **Primary completion:** 2028-12-31
- **Final completion:** 2029-06-30
- **Target enrollment:** 500 (ESTIMATED)
- **Last updated:** 2025-10-14


## Primary source

ClinicalTrials.gov registry: https://clinicaltrials.gov/study/NCT05581511

## Citation

> US National Library of Medicine, ClinicalTrials.gov registration NCT05581511, "Natural History Study of Cutaneous Neurofibromas in People With NF1". Retrieved via AI Analytics 2026-06-03 from https://api.ai-analytics.org/clinical/NCT05581511. Licensed CC0.

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