# ALS/MND Natural History Study Data Repository

> **NCT05966038** · — · RECRUITING · sponsor: **Massachusetts General Hospital** · enrollment: 5000 (estimated)

## Conditions studied

- ALS
- PLS
- MND (Motor Neurone DIsease)
- Kennedy Disease
- PMA - Progressive Muscular Atrophy
- PBP - Progressive Bulbar Palsy

## Interventions

_None listed._

## Key facts

- **NCT ID:** NCT05966038
- **Lead sponsor:** Massachusetts General Hospital
- **Sponsor class:** OTHER
- **Phase:** —
- **Study type:** OBSERVATIONAL
- **Status:** RECRUITING
- **Start date:** 2015-04-01
- **Primary completion:** 2030-12-31
- **Final completion:** 2030-12-31
- **Target enrollment:** 5000 (ESTIMATED)
- **Last updated:** 2025-11-14

## Collaborators

- [object Object]
- [object Object]
- [object Object]
- [object Object]
- [object Object]
- [object Object]
- [object Object]
- [object Object]
- [object Object]
- [object Object]
- [object Object]
- [object Object]
- [object Object]
- [object Object]
- [object Object]

## Primary source

ClinicalTrials.gov registry: https://clinicaltrials.gov/study/NCT05966038

## Citation

> US National Library of Medicine, ClinicalTrials.gov registration NCT05966038, "ALS/MND Natural History Study Data Repository". Retrieved via AI Analytics 2026-06-02 from https://api.ai-analytics.org/clinical/NCT05966038. Licensed CC0.

---

*[Clinical trials dataset](/datasets/clinical-trials) · CC0 1.0*