# The Struggle That Is Phenylketonuria : What Do The Patients and Caregivers Suffer From

> **NCT06280261** · — · COMPLETED · sponsor: **Hacettepe University** · enrollment: 156 (actual)

## Conditions studied

- Psychological Well-Being
- Caregiver Burden
- Life Stress

## Interventions

- **OTHER:** parenting stress index, Zarit burden scale, Rosenberg self esteem scale, stait trait anxiety inventory, struggles and difficulties questionnaire

## Key facts

- **NCT ID:** NCT06280261
- **Lead sponsor:** Hacettepe University
- **Sponsor class:** OTHER
- **Phase:** —
- **Study type:** OBSERVATIONAL
- **Status:** COMPLETED
- **Start date:** 2020-05-27
- **Primary completion:** 2020-09-01
- **Final completion:** 2020-09-01
- **Target enrollment:** 156 (ACTUAL)
- **Last updated:** 2024-02-28


## Primary source

ClinicalTrials.gov registry: https://clinicaltrials.gov/study/NCT06280261

## Citation

> US National Library of Medicine, ClinicalTrials.gov registration NCT06280261, "The Struggle That Is Phenylketonuria : What Do The Patients and Caregivers Suffer From". Retrieved via AI Analytics 2026-06-03 from https://api.ai-analytics.org/clinical/NCT06280261. Licensed CC0.

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