# WiTNNess - TNNT1 Myopathy Natural History Study

> **NCT06374719** · — · RECRUITING · sponsor: **Clinic for Special Children** · enrollment: 40 (estimated)

## Conditions studied

- TNNT1-associated Myopathy
- Infantile-onset Nemaline Rod Myopathy
- Myopathies, Nemaline
- Myopathy
- Myopathy, Rod
- Myopathy; Hereditary
- Amish Nemaline Myopathy
- Nemaline Myopathy 5
- NEM5
- Genetic Muscle Disease
- Recessive Hereditary Disorder (Autosomal)
- ANM

## Interventions

_None listed._

## Key facts

- **NCT ID:** NCT06374719
- **Lead sponsor:** Clinic for Special Children
- **Sponsor class:** OTHER
- **Phase:** —
- **Study type:** OBSERVATIONAL
- **Status:** RECRUITING
- **Start date:** 2018-09-23
- **Primary completion:** 2027-01-01
- **Final completion:** 2027-06-01
- **Target enrollment:** 40 (ESTIMATED)
- **Last updated:** 2025-02-12


## Primary source

ClinicalTrials.gov registry: https://clinicaltrials.gov/study/NCT06374719

## Citation

> US National Library of Medicine, ClinicalTrials.gov registration NCT06374719, "WiTNNess - TNNT1 Myopathy Natural History Study". Retrieved via AI Analytics 2026-06-05 from https://api.ai-analytics.org/clinical/NCT06374719. Licensed CC0.

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