# Development of Patient-Reported Outcome Measures Assessing Tumor Visibility and Appearance Concerns in Neurofibromatosis Type 1: A Qualitative Study

> **NCT06880991** · — · RECRUITING · sponsor: **National Cancer Institute (NCI)** · enrollment: 110 (estimated)

## Conditions studied

- Neurofibromatosis Type 1
- Neurofibroma

## Interventions

- **OTHER:** Arm 1

## Key facts

- **NCT ID:** NCT06880991
- **Lead sponsor:** National Cancer Institute (NCI)
- **Sponsor class:** NIH
- **Phase:** —
- **Study type:** OBSERVATIONAL
- **Status:** RECRUITING
- **Start date:** 2025-04-29
- **Primary completion:** 2027-03-31
- **Final completion:** 2028-03-31
- **Target enrollment:** 110 (ESTIMATED)
- **Last updated:** 2026-04-29


## Primary source

ClinicalTrials.gov registry: https://clinicaltrials.gov/study/NCT06880991

## Citation

> US National Library of Medicine, ClinicalTrials.gov registration NCT06880991, "Development of Patient-Reported Outcome Measures Assessing Tumor Visibility and Appearance Concerns in Neurofibromatosis Type 1: A Qualitative Study". Retrieved via AI Analytics 2026-07-26 from https://api.ai-analytics.org/clinical/NCT06880991. Licensed CC0.

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*[Clinical trials dataset](/datasets/clinical-trials) · CC0 1.0*