Psychological Evaluation of the Parental Experience of Newborn Screening for Infantile Spinal Muscular Atrophy in the Grand Est and Nouvelle-Aquitaine Regions

NCT07208903 · clinicaltrials.gov ↗

NOT_YET_RECRUITING

Status

36

Enrollment

OTHER

Sponsor class

Conditions

Spinal Muscular Atrophy (SMA)
Spinal Muscular Atrophy Type I

Interventions

BEHAVIORAL: focus group discussions
BEHAVIORAL: Interview with the psychologist

Sponsor

University Hospital, Strasbourg, France