# The Spanish National Registry for Myotonic Dystrophy Type 1

> **NCT07385443** · — · RECRUITING · sponsor: **Fundació Institut Germans Trias i Pujol** · enrollment: 3000 (estimated)

## Conditions studied

- Myotonic Dystrophy 1
- DM1
- Myotonic Dystrophy Type 1
- Myotonic Dystrophy, Congenital
- Steinert Disease

## Interventions

- **OTHER:** Patient Registry

## Key facts

- **NCT ID:** NCT07385443
- **Lead sponsor:** Fundació Institut Germans Trias i Pujol
- **Sponsor class:** OTHER
- **Phase:** —
- **Study type:** OBSERVATIONAL
- **Status:** RECRUITING
- **Start date:** 2025-06-02
- **Primary completion:** 2026-12-31
- **Final completion:** 2026-12-31
- **Target enrollment:** 3000 (ESTIMATED)
- **Last updated:** 2026-02-04

## Collaborators

- Instituto de Investigacion Sanitaria INCLIVA
- Biobizkaia Health Research Institute
- Biogipuzkoa Health Research Institute
- Germans Trias i Pujol Hospital
- Hospital Infanta Sofia
- Hospital de Basurto
- Hospital Donostia
- Hospitales Universitarios Virgen del Rocío
- Hospital Universitario Marqués de Valdecilla
- Complejo Hospitalario Universitario de Albacete
- Hospital Universitario La Fe
- Hospital Univeritario Ntra. Sra. de la Candelaria

## Primary source

ClinicalTrials.gov registry: https://clinicaltrials.gov/study/NCT07385443

## Citation

> US National Library of Medicine, ClinicalTrials.gov registration NCT07385443, "The Spanish National Registry for Myotonic Dystrophy Type 1". Retrieved via AI Analytics 2026-07-20 from https://api.ai-analytics.org/clinical/NCT07385443. Licensed CC0.

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