# BetterLife FSHD: A Patient-driven Health and Research Platform

> **NCT07409142** · — · RECRUITING · sponsor: **FSHD Society** · enrollment: 5000 (estimated)

## Conditions studied

- FSH
- FSH Muscular Dystrophy
- FSHD - Facioscapulohumeral Muscular Dystrophy
- FSHD1
- FSHD
- FSHD2
- Facioscapulohumeral Muscular Dystrophy
- Facioscapulohumeral Muscular Dystrophy 1
- Facioscapulohumeral Muscular Dystrophy 2
- Facioscapulohumeral Muscular Dystrophy (FSHD)
- Muscular Dystrophy, Facioscapulohumeral

## Interventions

- **OTHER:** Observational

## Key facts

- **NCT ID:** NCT07409142
- **Lead sponsor:** FSHD Society
- **Sponsor class:** OTHER
- **Phase:** —
- **Study type:** OBSERVATIONAL
- **Status:** RECRUITING
- **Start date:** 2024-08-02
- **Primary completion:** 2060-01
- **Final completion:** 2060-01
- **Target enrollment:** 5000 (ESTIMATED)
- **Last updated:** 2026-02-20


## Primary source

ClinicalTrials.gov registry: https://clinicaltrials.gov/study/NCT07409142

## Citation

> US National Library of Medicine, ClinicalTrials.gov registration NCT07409142, "BetterLife FSHD: A Patient-driven Health and Research Platform". Retrieved via AI Analytics 2026-05-27 from https://api.ai-analytics.org/clinical/NCT07409142. Licensed CC0.

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*[Clinical trials dataset](/datasets/clinical-trials) · CC0 1.0*