# NCI Childhood Cancer Data Initiative (CCDI) Led Pediatric, Adolescent, and Young Adult Rare Cancer Registry for Very Rare Solid Tumors

> **NCT07489378** · — · RECRUITING · sponsor: **National Cancer Institute (NCI)** · enrollment: 4000 (estimated)

## Conditions studied

- Very Rare Tumors
- Very Rare Cancers
- Other Solid Tumors
- Solid Tumor
- Pediatric Rare Tumors

## Interventions

- **OTHER:** Natural history study of individuals with very rare tumors

## Key facts

- **NCT ID:** NCT07489378
- **Lead sponsor:** National Cancer Institute (NCI)
- **Sponsor class:** NIH
- **Phase:** —
- **Study type:** OBSERVATIONAL
- **Status:** RECRUITING
- **Start date:** 2026-05-21
- **Primary completion:** 2035-04-01
- **Final completion:** 2037-04-01
- **Target enrollment:** 4000 (ESTIMATED)
- **Last updated:** 2026-05-18


## Primary source

ClinicalTrials.gov registry: https://clinicaltrials.gov/study/NCT07489378

## Citation

> US National Library of Medicine, ClinicalTrials.gov registration NCT07489378, "NCI Childhood Cancer Data Initiative (CCDI) Led Pediatric, Adolescent, and Young Adult Rare Cancer Registry for Very Rare Solid Tumors". Retrieved via AI Analytics 2026-05-25 from https://api.ai-analytics.org/clinical/NCT07489378. Licensed CC0.

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