# Getting on the same page: Leveraging an inpatient portal to engage families of hospitalized children

> **NIH AHRQ R21** · UNIVERSITY OF WISCONSIN-MADISON · 2021 · $149,667

## Abstract

PROJECT SUMMARY/ABSTRACT
While sharing honest, unbiased health information with parents is endorsed by the American Academy of
Pediatrics as critical to improving patient safety, hospitalizations present unique challenges for parents to
engage with clinicians. To improve information transparency, the American Family Children’s Hospital was the
first pediatric center to implement an inpatient portal (MyChart Bedside, Epic) – a bedside tablet app that gives
parents’ real-time access to clinical information from their child’s inpatient health record. Preliminary findings
suggest that parents want the portal expanded to include access to their child’s inpatient doctors’ daily notes,
detailing their child’s diagnoses, treatment, and discharge plans. Studies suggest adult outpatients reading
their doctors’ office visit notes had improved understanding of care and identified safety concerns that resulted
in changes in care. Whether sharing notes would provide similar benefits for parents during their child’s
hospitalization is unknown. The long-term goal of this research is to leverage an inpatient portal to engage
parents as a way to improve the quality and safety of care of hospitalized children. The objective of this
proposed study is to pilot test BedsideNotes – a new capability within the inpatient portal to share doctors’
admission and daily notes with parents during their child’s hospitalization. To guide the evaluation of this
innovative health IT capability, investigators will use a recognized sociotechnical systems framework, the
Systems Engineering Initiative for Patient Safety 2.0. This objective will be accomplished with these aims: 1)
Measure the use, usefulness, and acceptance of BedsideNotes, and 2) Identify parent and clinician (physician,
nurse) experiences with BedsideNotes. In this self-contained pilot study, the approach will be to share doctors’
notes with 40 parents of children <12-years old admitted to a hospitalist service at the American Family
Children’s Hospital. Mixed methods (EHR audit reports, surveys, interviews) will assess use and experiences
with sharing notes. These expected deliverables will be used to test the impact of BedsideNotes in a future
study. The assembled research team brings complementary expertise in pediatric health services research,
human factors and systems engineering, and consumer-facing informatics. This expertise and the team’s
experience successfully collaborating to evaluate the initial implementation of the inpatient portal at this
hospital form a strong foundation for this research. As faculty at an institution with extensive research
infrastructure, this team is in an ideal environment to complete this project. This proposal is innovative because
it will be the first to evaluate sharing doctors’ notes with parents of hospitalized children, an AHRQ priority
population. By expanding a commercially-available inpatient portal and incorporating feedback from a national
advisory group, findings wi...

## Key facts

- **NIH application ID:** 10110545
- **Project number:** 1R21HS027894-01
- **Recipient organization:** UNIVERSITY OF WISCONSIN-MADISON
- **Principal Investigator:** Michelle M Kelly
- **Activity code:** R21 (R01, R21, SBIR, etc.)
- **Funding institute:** AHRQ
- **Fiscal year:** 2021
- **Award amount:** $149,667
- **Award type:** 1
- **Project period:** 2021-09-01 → 2023-08-31

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/10110545

## Citation

> US National Institutes of Health, RePORTER application 10110545, Getting on the same page: Leveraging an inpatient portal to engage families of hospitalized children (1R21HS027894-01). Retrieved via AI Analytics 2026-05-24 from https://api.ai-analytics.org/grant/nih/10110545. Licensed CC0.

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