# Administrative Supplement to Toward Next Generation Data on Health and Life Changes at Older Ages:Measuring the Caregiver Burden of Dementia in a Population Representative Panel

> **NIH NIH U01** · UNIVERSITY OF SOUTHERN CALIFORNIA · 2020 · $372,845

## Abstract

Project Summary/Abstract
The proposed research focuses on estimating the prevalence of informal dementia caregiving
and determining the dose-response effect of dementia caregiving burden on outcomes in the
Understanding America Study (UAS), a large online panel representative of the U.S. adult
population. In order to pursue these goals, we will leverage the UAS infrastructure of the data
collected in the UAS, both of which have been greatly enriched by the work we have been carrying
out under the parent grant 1 U01 AG054580-01A1 ”Toward Next Generation Data on Health and
Life Changes at Older Ages”. For this reason, we request an administrative supplement to the
parent grant to accomplish three important research objectives. First, we will estimate the
prevalence of informal caregiving in a population-representative sample, where survey
participants self-report the extent of informal caregiving they provide. This approach is different
from that of other surveys, where caregivers are identified by respondents receiving help with
particular daily activities. Online survey administration in the UAS will enable us to regularly
update prevalence estimates at a relatively limited cost. Second, in collaboration with the Stress
Measurement Network, we will develop a comprehensive questionnaire to effectively measure
caregiver burden and stress over time. We will complement this information with an Ecological
Momentary Assessment (EMA) of mood and stress, using the mobile app we developed under
the parent grant. Third, we will monitor health, wellbeing, and economic circumstances over time
and compare levels and changes in outcomes of dementia caregivers with those of non-dementia
caregivers as well as non-caregivers. Since study participants are members of the UAS, they can
be surveyed beyond the duration of this project as long as they remain in the panel. In the future,
this may represent a unique opportunity to gauge potential long-lasting consequences of
caregiving for the wellbeing of those who are not currently assisting dementia patients, but have
done so in the past.

## Key facts

- **NIH application ID:** 10123796
- **Project number:** 3U01AG054580-04S2
- **Recipient organization:** UNIVERSITY OF SOUTHERN CALIFORNIA
- **Principal Investigator:** Arie Kapteyn
- **Activity code:** U01 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2020
- **Award amount:** $372,845
- **Award type:** 3
- **Project period:** 2017-09-30 → 2022-06-30

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/10123796

## Citation

> US National Institutes of Health, RePORTER application 10123796, Administrative Supplement to Toward Next Generation Data on Health and Life Changes at Older Ages:Measuring the Caregiver Burden of Dementia in a Population Representative Panel (3U01AG054580-04S2). Retrieved via AI Analytics 2026-05-23 from https://api.ai-analytics.org/grant/nih/10123796. Licensed CC0.

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