# Understanding the Expectations and Needs of Diverse Communities for Navigating Research Results

> **NIH NIH R01** · COLUMBIA UNIVERSITY HEALTH SCIENCES · 2020 · $160,363

## Abstract

PROJECT SUMMARY
Understanding the preferences and expectations of underrepresented communities for receiving genetic
results in a research setting and navigating additional information and services in the clinical setting are critical
to building and maintaining research relationships and engendering trust, particularly with groups who have
historically not participated in biomedical research. The proposed supplement leverages a unique opportunity
to investigate the preferences of African American and Hispanic/Latino communities, including the uninsured,
who are being recruited for the All of Us Research Program (AoURP) for different types of genetic test results
and their expectations and needs for information and resources to allow for informed, validated follow-up of
research results and clinical care. We will fulfill the following aims to achieve our objectives: (1) Identify the
preferences of African American, Hispanic/Latino and/or uninsured individuals, who reside in communities
being recruited for the AoURP, for the return of specific categories of genetic results; and (2) Identify the
expectations and needs of African American, Hispanic/Latino and/or uninsured individuals, who reside in
communities being recruited for the AoURP to navigate follow-up care related to the return of research results.
We will achieve these goals by collecting in-depth qualitative data via twelve focus groups followed by 25
individual interviews with African American, Hispanic/Latino and/or uninsured individuals, who reside in
communities being recruited for the AoURP in New York City. This knowledge may be useful in strategies that
adapt recruitment and retention strategies to AoURP participants’ values and expectations and have significant
impact on policy.

## Key facts

- **NIH application ID:** 10131384
- **Project number:** 3R01HG010330-04S1
- **Recipient organization:** COLUMBIA UNIVERSITY HEALTH SCIENCES
- **Principal Investigator:** Sandra Soo-Jin Lee
- **Activity code:** R01 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2020
- **Award amount:** $160,363
- **Award type:** 3
- **Project period:** 2019-02-23 → 2022-06-30

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/10131384

## Citation

> US National Institutes of Health, RePORTER application 10131384, Understanding the Expectations and Needs of Diverse Communities for Navigating Research Results (3R01HG010330-04S1). Retrieved via AI Analytics 2026-05-23 from https://api.ai-analytics.org/grant/nih/10131384. Licensed CC0.

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