# Recruitment Innovations to Enhance Diversity in AD Research

> **NIH NIH R01** · UNIVERSITY OF PITTSBURGH AT PITTSBURGH · 2021 · $452,286

## Abstract

ABSTRACT
Despite experiencing Alzheimer’s-related health problems at a disproportionate rate, African Americans are
consistently and severely underrepresented in Alzheimer’s disease and related disorders (ADRD) research
projects. Insufficient enrollment of African Americans in this line of research is a nationally-recognized
problem. This is highly concerning not only because of the need for unbiased, representative samples in basic
science and clinical research, but also because involving persons from underrepresented minority groups is
crucial to advancing our understanding of, and ultimately combating, health disparities. In response to PAR-15-
349 “Health Disparities and Alzheimer’s Disease”, we propose to develop and evaluate a novel strategy that
uses a storytelling campaign to enhance recruitment of African American adults into research at the University
of Pittsburgh Alzheimer Disease Research Center. In Specific Aim 1, we will build on our promising pilot work
to refine and evaluate community members’ acceptance of a storytelling strategy for communicating
Alzheimer’s-related research participation experiences of African Americans in mid and late life. The
storytelling strategy will highlight African Americans’ research participation narratives, as derived from a series
of ethnographic interviews and told using short videos. In Specific Aim 2, we will evaluate the effect of this
storytelling strategy on recruitment of African Americans into ADRD research. Videos developed in Aim 1 will
be incorporated into all existing ADRC recruitment efforts, ranging from community events to social media
strategies. The primary outcome for Aim 2 will be the proportion of African Americans recruited to the ADRC
Clinical Core over an 18 month period, with the preceding 18 month period serving as the comparator. Specific
Aim 3 will use path analysis modeling to explore the mechanisms by which a storytelling strategy increases
enrollment of African Americans into ADRD research in general, and into a specific study designed to address
health disparities. Realizing the goals of this study will increase racial and ethnic diversity in ADRD research at
a leading NIA-funded ADRC and ultimately, help to reduce cognitive health disparities amongst African
Americans. Findings from this study will directly inform best practices for increasing diversity within the
national AD Centers network, with significant implications for a range of underrepresented populations.
Furthermore, these findings will also have applications in other disease contexts in which scientific progress is
constrained by insufficient recruitment of persons from underrepresented racial and ethnic minority groups.

## Key facts

- **NIH application ID:** 10131728
- **Project number:** 5R01AG054518-05
- **Recipient organization:** UNIVERSITY OF PITTSBURGH AT PITTSBURGH
- **Principal Investigator:** JENNIFER Hagerty LINGLER
- **Activity code:** R01 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2021
- **Award amount:** $452,286
- **Award type:** 5
- **Project period:** 2017-08-01 → 2024-04-30

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/10131728

## Citation

> US National Institutes of Health, RePORTER application 10131728, Recruitment Innovations to Enhance Diversity in AD Research (5R01AG054518-05). Retrieved via AI Analytics 2026-05-24 from https://api.ai-analytics.org/grant/nih/10131728. Licensed CC0.

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