# PediQUEST: Improving Children's Quality of Life through e-PROMS and Palliative Care (Diversity Supplement)

> **NIH NIH R01** · DANA-FARBER CANCER INST · 2020 · $93,500

## Abstract

PROJECT SUMMARY
As principal investigator, I write this administrative supplement to our current trial, Pediatric Quality of Life and
Evaluation of Symptoms Technology Response to Pediatric Oncology Symptom Experience (PediQUEST
Response) which employs a multicenter randomized controlled trial (RCT) approach to investigate if early
palliative care consultation assisted by electronic Patient-Reported Outcomes (e-PROMS) and real-time
feedback reports improve health related quality of life (HRQoL) and symptom burden in children with advanced
cancer as well as parental psychological distress compared to usual care. I plan to add Dr. Ijeoma Julie Eche to
our research team as a post-doctoral research fellow for the nearly two-year remainder of the grant period. As
an early stage African-American nurse scientist, Dr. Eche is well suited to build a program of research to improve
cancer-related disparities in children with cancer and their families. She aspires to be a visionary leader on the
vanguard of nursing science as she studies and develops interventions to support families facing pediatric
cancer, while also educating the next generation of scientists. To prepare for this aspiration, she has the
opportunity to train with me for the next two years, building the foundation and skills for a mentored career
development award at an academic center of excellence as she begins her first tenure-track appointment as a
nurse scientist. She will engage in didactic and continuing education along with practical experience as a co-
investigator on the PediQUEST Response study. Ultimately, Dr. Eche plans to bring her previous and future
training to bear on an academic position in which she excels in the tripartite mission of a tier one, research
intensive school of nursing as an independent, extraordinary nurse scientist.

## Key facts

- **NIH application ID:** 10145391
- **Project number:** 3R01NR016720-04S1
- **Recipient organization:** DANA-FARBER CANCER INST
- **Principal Investigator:** Joanne Wolfe
- **Activity code:** R01 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2020
- **Award amount:** $93,500
- **Award type:** 3
- **Project period:** 2017-06-08 → 2022-03-31

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/10145391

## Citation

> US National Institutes of Health, RePORTER application 10145391, PediQUEST: Improving Children's Quality of Life through e-PROMS and Palliative Care (Diversity Supplement) (3R01NR016720-04S1). Retrieved via AI Analytics 2026-05-24 from https://api.ai-analytics.org/grant/nih/10145391. Licensed CC0.

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