# Patient reported outcomes, COVID-19 knowledge and perceived risks, and healthcare among deaf and hard of hearing adults in the U.S.

> **NIH NIH R01** · GALLAUDET UNIVERSITY · 2020 · $179,842

## Abstract

Current widely used NIH-funded patient reported outcome measurement systems (PROMIS)
include domains that assess global, physical, mental, and social health from the patient’s perspective.
PROMIS is heavily dependent on English, which is a serious barrier to DHH patients who use American
Sign Language (ASL) and demonstrate low English proficiency. In 2015, PI Kushalnagar was awarded
an R01 to address this knowledge gap through 1) linguistic and psychometric validation of PROMIS-
Deaf Profile in ASL and 2) cross-sectional analysis of patient reported outcomes (PROs) in an U.S.
sample of DHH adults who use ASL. We have added revised aims to address the urgent issues related
to coronavirus.
 This revision application addresses an immediate need to create an online ASL/English survey
to quickly deploy and assess an underserved DHH population’s knowledge/attitude toward physical
distancing, self-perceived risk for COVID-19, patient-physician communication, and healthcare access
experience. This study will also gather new data from key stakeholders that works with this population;
and will be used to inform the correct interpretation of the quantitative findings from PROs and COVID-
19 data. Together, using mixed methods approach, the team will integrate quantitative PROs and
COVID-19 data with stakeholder qualitative data to enlighten new findings and provide the necessary
foundation for public health policy and program strategies aimed at improving human communication in
DHH population.

## Key facts

- **NIH application ID:** 10149142
- **Project number:** 3R01DC014463-05S4
- **Recipient organization:** GALLAUDET UNIVERSITY
- **Principal Investigator:** Poorna Kushalnagar
- **Activity code:** R01 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2020
- **Award amount:** $179,842
- **Award type:** 3
- **Project period:** 2020-05-01 → 2021-04-30

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/10149142

## Citation

> US National Institutes of Health, RePORTER application 10149142, Patient reported outcomes, COVID-19 knowledge and perceived risks, and healthcare among deaf and hard of hearing adults in the U.S. (3R01DC014463-05S4). Retrieved via AI Analytics 2026-05-28 from https://api.ai-analytics.org/grant/nih/10149142. Licensed CC0.

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