# Homebound with Dementia in the Context of COVID-19

> **NIH NIH R01** · ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI · 2020 · $423,728

## Abstract

Homebound with Dementia in the Context of COVID-19
Summary/Abstract
Individuals with dementia live for many years at home in the community. Even though the community is the
overwhelming preference for site of care, the experience of living with dementia in the community is challenging
for patients and their caregiving families. In the existing parent grant, we examine how being homebound impacts
the lived experience of individuals with dementia using the longitudinal, nationally representative National Health
and Aging Trends Study and the companion National Study of Caregivers with linkages to Medicare claims, the
U.S Census, and other geographic data. In this supplement, we examine the impact of COVID-19 on homebound
adults with dementia and their caregiving families in the epicenter of the pandemic, New York City. Using
routinely collected data within the Mount Sinai Health System, we will examine change in care delivery for
homebound patients during COVID-19 outbreak in NYC, compare end-of-life care experiences for homebound
patients and caregivers before, during, and after the COVID-19 pandemic, and conduct an in-depth analysis of
care disruptions for homebound patients with dementia during COVID-19. In summary, this project will critically
enhance our understanding of the lived experience of patients with dementia by examining their experience
accessing care throughout this pandemic. Prior to the onset of COVID-19, homebound older adults with dementia
faced social isolation and routine challenges to accessing healthcare. Patients are highly reliant on family
caregivers for daily support.1 In the wake of this pandemic, there are tremendous and unprecedented challenges
for these individuals and their caregivers who support them. The proposed study will allow for the first
documentation of the homebound experience before, during, and after the peak of COVID-19 infections in New
York City and will set the stage for new guidelines and research into emergency preparedness, program
adaptations and partnerships with community organizations for persons living with dementia in the community
and their caregiving families.

## Key facts

- **NIH application ID:** 10157550
- **Project number:** 3R01AG060967-02S1
- **Recipient organization:** ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI
- **Principal Investigator:** KATHERINE A ORNSTEIN
- **Activity code:** R01 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2020
- **Award amount:** $423,728
- **Award type:** 3
- **Project period:** 2019-02-01 → 2023-11-30

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/10157550

## Citation

> US National Institutes of Health, RePORTER application 10157550, Homebound with Dementia in the Context of COVID-19 (3R01AG060967-02S1). Retrieved via AI Analytics 2026-05-22 from https://api.ai-analytics.org/grant/nih/10157550. Licensed CC0.

---

*[NIH grants dataset](/datasets/nih-grants) · CC0 1.0*