# Understanding and Planning Donation Information Needs of Asian American Communities

> **NIH NIH R01** · TEMPLE UNIV OF THE COMMONWEALTH · 2021 · $237,750

## Abstract

PROJECT SUMMARY
 As a collective group, Asian American Populations (AAPs) account for only 5.4% of the population, but
they have become the fastest growing racial group with an estimated growth of 128% in the next 20 years. This
group's relatively small proportion of the population, combined with mainstream perspectives of AAPs as a
“model minority” group, has led to a dangerous omission of AAPs in national conversations about health and
organ transplantation as a therapeutic modality to End Stage Renal Disease (ESRD) and End Stage Liver
Disease (ESLD). Specifically, they comprise 7.6% of all individuals on the national organ waitlist as of October
14, 2016, but only account for 2.7% of all deceased donors. The need for livers among AAPs is also great due
to high incidence of Hepatitis C infection and resultant hepatic failure. An estimated one in 12 AAPs also have
Hepatitis B, and half of all Americans with Hepatitis B are AAPs. Thus, transplantation may be an underutilized
avenue, and advanced knowledge of liver transplantation may ultimately reduce the prevalence of eventual
death due to ESLD and also associated cancers.
 In response to the dearth of available studies about organ donation related attitudes and knowledge
among AAPs, this study proposes to extend our understanding of the factors that affect donation from AAP
families through a rigorous series of focus groups and a national probability survey. The findings will constitute
the most the first national-level body of knowledge about AAPs' attitudes and knowledge about organ donation.
The process will also be guided by a Community Advisory Board (CAB), composed of community and religious
leaders from locally based Asian American communities. The CAB will allow for the development and testing of
a culturally appropriate pilot intervention that can assist in increasing donor designation for deceased donation
and consideration of living donation. The results will also serve as the basis for future, larger scale
interventions for increasing deceased and living donation designations among AAPs.

## Key facts

- **NIH application ID:** 10172890
- **Project number:** 5R01DK114881-05
- **Recipient organization:** TEMPLE UNIV OF THE COMMONWEALTH
- **Principal Investigator:** LAURA A. SIMINOFF
- **Activity code:** R01 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2021
- **Award amount:** $237,750
- **Award type:** 5
- **Project period:** 2017-08-01 → 2023-05-31

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/10172890

## Citation

> US National Institutes of Health, RePORTER application 10172890, Understanding and Planning Donation Information Needs of Asian American Communities (5R01DK114881-05). Retrieved via AI Analytics 2026-05-22 from https://api.ai-analytics.org/grant/nih/10172890. Licensed CC0.

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