# North American Association of Central Registries INC. (NAACR): Virtual Pooled Registry Project.

> **NIH NIH N02** · NORTH AMERICAN ASSN/CENTRAL CANCER REG · 2020 · $235,092

## Abstract

The Virtual Pooled Registry (VPR) Project will facilitate the linkage of confidential central cancer registry databases with existing sets of patients included in cohort studies, post-marketing surveillance as well as clinical trials for the purpose of providing follow-up information on these patients who may exist within a central cancer registry’s database. The current method for these linkages requires the researcher to work directly with each registry involved in the follow-up process including preparing and completing IRB documents, working with the registry to submit a standard dataset. This often requires significant time and resources and frequently there are no matches. For a large cohort study this may involve direct contact with a large percent of the State and regional central cancer registries in the United States. 

The purpose of the VPR project is to create a capacity similar to the National Death Index without the creation of an aggregated national level cancer patient database. The VPR will consist of “one stop shop” process through which an interested researcher could submit one research application and one research file which will undergo one standardized linkage simultaneously at multiple registries.

## Key facts

- **NIH application ID:** 10246142
- **Project number:** 261201400004I-P00003-26100007-1
- **Recipient organization:** NORTH AMERICAN ASSN/CENTRAL CANCER REG
- **Principal Investigator:** Betsy Kohler
- **Activity code:** N02 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2020
- **Award amount:** $235,092
- **Award type:** —
- **Project period:** 2020-09-19 → 2021-09-18

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/10246142

## Citation

> US National Institutes of Health, RePORTER application 10246142, North American Association of Central Registries INC. (NAACR): Virtual Pooled Registry Project. (261201400004I-P00003-26100007-1). Retrieved via AI Analytics 2026-05-23 from https://api.ai-analytics.org/grant/nih/10246142. Licensed CC0.

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