# A New Model of Rehabilitation to Meet the Cultural Needs of American Indian/Alaska Native Children with Disabilities

> **NIH NIH K23** · SEATTLE CHILDREN'S HOSPITAL · 2021 · $40,602

## Abstract

Project Summary/Abstract
 American Indians and Alaska Natives (AI/AN) report disability at higher levels than the general population.
Social connection through participation in traditional cultural activities is an important part of AI/AN health and
wellness. In a preliminary study, AI/AN children and youth with disabilities experienced barriers to participation
in traditional cultural activities related to their functional impairments. The children and youth did not have their
cultural needs discussed during their rehabilitation sessions, despite participation in desired activities being a
goal of rehabilitation programs and several of the barriers having potential solutions through rehabilitation
interventions. Without culturally-centered rehabilitation services, AI/AN children with disabilities will not receive
the full potential benefit of rehabilitation services, thus reducing their ability to attain optimal functional and
wellness outcomes. A systematic approach to designing and testing culturally-centered rehabilitation services
for AI/AN children with disabilities is necessary. The goal of this proposal is to integrate stakeholder
perspectives into a novel model of culturally-centered rehabilitation and test the acceptability and feasibility of
this model during rehabilitation services for AI/AN children with neurological impairments. In Aim 1, we will
develop and administer a survey to understand pediatric rehabilitation professionals’ knowledge, attitudes, and
behaviors when serving AI/AN children and their perceived barriers and facilitators for culturally-centered care.
In Aim 2, we will collaboratively develop a novel model of culturally-centered rehabilitation with a stakeholder
advisory committee, and with input from a panel of experts in AI/AN health, AI/AN disability, and pediatric
rehabilitation health services. The stakeholder advisory committee will consist of AI/AN users of neurological
rehabilitation services, parents or guardians of AI/AN children using neurological rehabi litation services, AI/AN
and non-AI/AN pediatric rehabilitation professionals, AI/AN elders, and AI/AN traditional healers. Finally, in Aim
3, we will test the acceptability and feasibility of the novel culturally-centered rehabilitation service model during
pediatric neurological rehabilitation services, using quantitative and qualitative evaluations. This research plan
is part of a K23 proposal designed to provide scholarly training, mentorship, and support for Dr. Fuentes to
gain skills and experience needed to be an independent investigator conducting community-based and
stakeholder-engaged research to design effective, culturally-appropriate interventions to improve the health
and functional outcomes of AI/AN children with disabilities. To achieve this objective, she will pursue training
in: (1) community-based participatory research and stakeholder-engaged research; (2) survey research
methods; (3) modified Delphi processes; and (4) the design, impl...

## Key facts

- **NIH application ID:** 10271270
- **Project number:** 5K23MD014157-02
- **Recipient organization:** SEATTLE CHILDREN'S HOSPITAL
- **Principal Investigator:** Molly M. Fuentes
- **Activity code:** K23 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2021
- **Award amount:** $40,602
- **Award type:** 5
- **Project period:** 2020-09-25 → 2022-06-30

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/10271270

## Citation

> US National Institutes of Health, RePORTER application 10271270, A New Model of Rehabilitation to Meet the Cultural Needs of American Indian/Alaska Native Children with Disabilities (5K23MD014157-02). Retrieved via AI Analytics 2026-05-24 from https://api.ai-analytics.org/grant/nih/10271270. Licensed CC0.

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