# Feasibility and acceptability of introducing person-centered narratives in an acute care setting for people with Alzheimer's and Dementia

> **NIH NIH R43** · MEMORYWELL LLC · 2021 · $499,994

## Abstract

Providing appropriate care for persons with dementia (PWD) poses a significant
challenge for hospitals and health systems. Hospitals are often disorienting environments,
particularly for PWD who can have difficulty expressing themselves and communicating their
immediate needs or longer-term goals to physicians, nurses or other hospital providers. Having
the life stories of patients with such cognitive impairments in the electronic health record (EHR)
may provide an opportunity to improve person-centered care, the foundation of the Alzheimer’s
Association’s Dementia Care Practice Recommendations. Brief life stories can allow the care
team to see the person beyond their cognitive disabilities and understand the person’s current
actions, beliefs, and values. The purpose of this Phase I study is to test the feasibility and
acceptability of adapting MemoryWell’s life story solution, originally designed for long-term
care settings, in an acute care hospital setting in which brief patient life stories would be
incorporated into the hospital EHR. To accomplish this, in partnership with University of
California San Francisco Acute Care for Elders (ACE) unit, Aim 1 of this study will take an
iterative, participatory-design approach including interviews and surveys of patients, family
members, and hospital providers to adapt MemoryWell’s life story interview process and
questionnaire for PWD in the acute care hospital setting. Aim 2 will employ a similar iterative,
participatory-design approach to co-design a system, story format, and logistics for integrating
life stories within the EHR in the acute care setting, as well as a preliminary investigation of best
practices for transmitting these stories to post-acute settings. Following this, in Aim 3, 25 stories
will be created for PWD admitted to the UCSF ACE unit. Following the implementation of these
stories according to protocols established in Aims 1 and 2, eligible patients, family members,
and hospital providers will be interviewed and surveyed about their experiences with the life
stories to establish the acceptability and feasibility of their incorporation in the ACE setting. Aim
3 will also include analysis of usage data from the UCSF EHR to provide quantitative metrics of
life story access across different types of hospital provider users (physicians, nurses, patient care
assistants, social workers, chaplains and case managers). To lay the groundwork for a future
randomized controlled trial (RCT), Aim 3 participants will also be asked to provide input on
potential scales and outcome measures they believe are most appropriate and relevant when
using life stories in the acute care hospital setting.

## Key facts

- **NIH application ID:** 10325290
- **Project number:** 1R43AG074775-01
- **Recipient organization:** MEMORYWELL LLC
- **Principal Investigator:** Jay Newton-Small
- **Activity code:** R43 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2021
- **Award amount:** $499,994
- **Award type:** 1
- **Project period:** 2021-09-01 → 2023-08-31

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/10325290

## Citation

> US National Institutes of Health, RePORTER application 10325290, Feasibility and acceptability of introducing person-centered narratives in an acute care setting for people with Alzheimer's and Dementia (1R43AG074775-01). Retrieved via AI Analytics 2026-05-26 from https://api.ai-analytics.org/grant/nih/10325290. Licensed CC0.

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