# Developing and pilot testing culturally based educational videos for Puerto Rican and African American home hospice caregivers

> **NIH NIH K76** · WEILL MEDICAL COLL OF CORNELL UNIV · 2021 · $184,944

## Abstract

PROJECT SUMMARY
Overview: The proposal aims to develop and pilot test culturally based educational videos for Puerto Rican and
African American home hospice caregivers (CGs).
Background: Formal information and education around symptom
of
forefront
related issues is lacking for many family CGs
home hospice patients. However, discussions around understanding and managing symptoms is often at the
of the minds of hospice providers and CGs.In one study of hospice CGs, 48 out of 52 CGs (92%)
expressed concerns about patient care issues (e.g., patient pain, symptoms). In another study analyzing audio
recordings of home hospice visits, the average number of medications discussed was 4, and 67% of
interactions with CGs focused on symptom knowledge skills.
Through interviews with home hospice CGs, Dr. Phongtankuel has identified gapsin knowledge on caring
for
dying
patients.
In addition, Dr. Phongtankuel has found that lack of CG knowledge and/or support often
leads to unwanted patient outcomes, including patient hospitalization.
 Despite the focus hospices place on managing symptoms to maintain patient comfort, CG still have
concerns and lack of knowledge around symptom related issues. Therefore, additional interventions are
needed to address this problem.
Research plan: The aims of the proposal are, (1) to gather input, through interviews and focus groups, from
Puerto Rican and African American family CGs to understand culturally based views and knowledge gaps
around symptom related issues in home hospice care, (2) to develop 12 video scripts, using experience based
codesign, with input from stakeholder groups (scripts will be used to produce educational videos on symptom
related issues for Puerto Rican and African American CGs) and (3) To pilot CG educational videos with Puerto
Rican (n=10) and African American (n=10) family CGs receiving home hospice care.
Environment: The study team is a preeminent group with expertise in hospice and palliative care, social work
and video production. By combining the resources and expertise from multiple groups, the proposal has the
potential to lead to advances in improving CG knowledge and education around symptom related issues at the
end of life and support the care CGs provide to the care recipient.

## Key facts

- **NIH application ID:** 10406070
- **Project number:** 3K76AG059997-03S1
- **Recipient organization:** WEILL MEDICAL COLL OF CORNELL UNIV
- **Principal Investigator:** Veerawat Phongtankuel
- **Activity code:** K76 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2021
- **Award amount:** $184,944
- **Award type:** 3
- **Project period:** 2019-09-01 → 2024-04-30

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/10406070

## Citation

> US National Institutes of Health, RePORTER application 10406070, Developing and pilot testing culturally based educational videos for Puerto Rican and African American home hospice caregivers (3K76AG059997-03S1). Retrieved via AI Analytics 2026-05-24 from https://api.ai-analytics.org/grant/nih/10406070. Licensed CC0.

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