# Regional Oncology Research Center

> **NIH NIH P30** · JOHNS HOPKINS UNIVERSITY · 2021 · $150,000

## Abstract

Project Summary
The long-term objective of this study is to improve compliance with standard of care recommendations for
neuropsychological assessment (NPA) for children with central nervous system (CNS) tumors treated at our
institution by developing a health system intervention to overcome barriers to referral for the NPA. Specific Aims
include; 1) Identify health system/organizational, provider and community/patient-level characteristics that
contribute to disparities in referral for [standard of care] NPA in children diagnosed with CNS tumors. 2) Develop
a provider stakeholder engaged health system/organization intervention that addresses more consistent
implementation of the standard of care and minimizes identified barriers. Methods for aim one will include
electronic medical review for care team and health system specific data, provider survey and patient/community
data for pertinent social determinants of health. The data will be analyzed to identify the characteristics amenable
to a health system intervention. Methods for aim two include convening provider stakeholders to establish health
system policy followed by embedding policy into established provider institutional education and developing an
EMR, self-sustaining, intervention to promote compliance with standard of care and institutional policy. After at
least 3 months of implementation of the policy/EMR intervention (e.g., presumably June-August 2022), the
neuro-oncology database will be queried to identify brain tumor patients with non-terminal disease receiving care
in the time frame and cross-reference with the referral database to confirm referral has been completed. The
target goal will be to double the referral rate from that observed in our preliminary data of 43% to at least 86%.

## Key facts

- **NIH application ID:** 10409122
- **Project number:** 3P30CA006973-58S3
- **Recipient organization:** JOHNS HOPKINS UNIVERSITY
- **Principal Investigator:** WILLIAM George NELSON
- **Activity code:** P30 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2021
- **Award amount:** $150,000
- **Award type:** 3
- **Project period:** 2021-09-01 → 2022-04-30

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/10409122

## Citation

> US National Institutes of Health, RePORTER application 10409122, Regional Oncology Research Center (3P30CA006973-58S3). Retrieved via AI Analytics 2026-05-24 from https://api.ai-analytics.org/grant/nih/10409122. Licensed CC0.

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