# Administrative Unit for the GLIA-CTN

> **NIH NIH U54** · CHILDREN'S HOSP OF PHILADELPHIA · 2022 · $184,287

## Abstract

Abstract
The GLIA-CTN Administrative Unit will coordinate all consortium activities and finances and will set general
policies and procedures in collaboration with the RDCRN and Office of Rare Disorders (ORD)/ National
Institutes of Child Health and Development (NICHD). In addition, the Unit will serve as the administrative
center for the Data Integration Core of the Consortium, to centralize the ability of the GLIA-CTN to collect
from and deliver data to relevant stakeholders, including the RDCRN DMCC, patient advocacy partners and
industry collaborators. The Administrative Unit will also be responsible for all regulatory activities of GLIA:
ongoing evaluation of productivity at sites; oversight of all projects including pilot projects; and oversight of
the career development program. In addition, the Unit will be responsible for NIH and federal compliance,
such as implementation of regulatory activities, observance of NIH and federal policies regarding human
subject protections, Health Insurance Portability and Accountability Act (HIPAA) stipulations, and the
inclusion of women, minorities and children. Details of implementation within the Administrative Unit are
described below and include the chain of command for decision-making and administration, the reporting
structure, the communication plan, as well as for the overall integration of GLIA with RDCRN activities. This
component describes the key roles of the Administrative Unit, as well as the governance of the GLIA-CTN,
the use of a Data Integration Core, all committees and the mechanisms for collaboration with the patient
advocacy groups.

## Key facts

- **NIH application ID:** 10442669
- **Project number:** 5U54NS115052-04
- **Recipient organization:** CHILDREN'S HOSP OF PHILADELPHIA
- **Principal Investigator:** Adeline Lucie Vanderver
- **Activity code:** U54 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2022
- **Award amount:** $184,287
- **Award type:** 5
- **Project period:** 2019-09-30 → 2024-06-30

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/10442669

## Citation

> US National Institutes of Health, RePORTER application 10442669, Administrative Unit for the GLIA-CTN (5U54NS115052-04). Retrieved via AI Analytics 2026-05-23 from https://api.ai-analytics.org/grant/nih/10442669. Licensed CC0.

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