# Career Enhancement Core of GLIA-CTN

> **NIH NIH U54** · CHILDREN'S HOSP OF PHILADELPHIA · 2022 · $124,226

## Abstract

Abstract
The Global Leukodystrophy Initiative (GLIA) has made education and improved standards of care a key
aspect of their mission. We acknowledge the importance of education and outreach related to the
leukodystrophies across stakeholders, including patients, families, primary care providers and specialty
providers. The GLIA consortium has published the only current comprehensive recommendations for
standards of care across these conditions. Our investigators and their institutions have a longstanding
commitment to educational efforts and community outreach. Advocacy partners participating in the GLIA
Clinical Trials Network (GLIA-CTN) are also strong advocates for improved education. The GLIA-CTN career
development program will leverage the input of the patient advocacy groups and our investigators to enhance
knowledge of leukodystrophies within the community. Although a full resolution of educational needs in the
leukodystrophy community is beyond the scope of this application, the GLIA-CTN will lay the groundwork for
development of a multi-stakeholder educational approach through the following aims:
Educational Aim 1: to develop a process to integrate relevant stakeholder input on development of
educational programs including clinicians, researchers, patients and their families/ caregivers.
Educational Aim 2: to establish a clinical investigator training program in the leukodystrophies to attract and
train the next generation of researchers to advancing the care of individuals affected by the leukodystrophies.

## Key facts

- **NIH application ID:** 10442674
- **Project number:** 5U54NS115052-04
- **Recipient organization:** CHILDREN'S HOSP OF PHILADELPHIA
- **Principal Investigator:** Adeline Lucie Vanderver
- **Activity code:** U54 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2022
- **Award amount:** $124,226
- **Award type:** 5
- **Project period:** 2019-09-30 → 2024-06-30

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/10442674

## Citation

> US National Institutes of Health, RePORTER application 10442674, Career Enhancement Core of GLIA-CTN (5U54NS115052-04). Retrieved via AI Analytics 2026-05-23 from https://api.ai-analytics.org/grant/nih/10442674. Licensed CC0.

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