# University of Utah Center of Excellence in ELSI research (UCEER)

> **NIH NIH RM1** · UTAH STATE HIGHER EDUCATION SYSTEM--UNIVERSITY OF UTAH · 2022 · $991,250

## Abstract

PROJECT SUMMARY
This application is for renewal of funding for the Utah Center of Excellence in ELSI Research
(UCEER). Our Center has received funding under a P20 grant from 2014 – 2016 and under an
RM1 grant from 2016 – 2020. UCEER is primarily focused on ELSI issues in population-based
genetic testing and screening. For the current funding cycle, UCEER has had a strong emphasis
on newborn screening, prenatal screening and carrier screening. For this renewal, we propose
extending this focus to also address issues with genetic disabilities, including cost- effectiveness
of treatments, adaptation and support within families and the community, and legal/policy
issues. In addition, we propose to address issues arising from population-based heritage testing
by direct to consumer genetic testing companies. We propose to maintain a robust set of efforts
to involve faculty from a broad range of disciplines and students from the undergraduate to
post-doc levels. UCEER has received a R25 award from NHGRI, linked to our RM1 funding,
that supports undergraduate and graduate students who identify with a disability. UCEER has
developed an efficient administrative structure and processes and a strong group of staff to
support our research and educational programs.

## Key facts

- **NIH application ID:** 10474367
- **Project number:** 5RM1HG009037-07
- **Recipient organization:** UTAH STATE HIGHER EDUCATION SYSTEM--UNIVERSITY OF UTAH
- **Principal Investigator:** ERIN ROTHWELL
- **Activity code:** RM1 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2022
- **Award amount:** $991,250
- **Award type:** 5
- **Project period:** 2016-05-16 → 2024-05-31

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/10474367

## Citation

> US National Institutes of Health, RePORTER application 10474367, University of Utah Center of Excellence in ELSI research (UCEER) (5RM1HG009037-07). Retrieved via AI Analytics 2026-05-22 from https://api.ai-analytics.org/grant/nih/10474367. Licensed CC0.

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