# Admin Core

> **NIH NIH U54** · MAYO CLINIC ROCHESTER · 2022 · $248,257

## Abstract

ADMINISTRATIVE CORE-ABSTRACT/PROJECT SUMMARY
The goal of the Administrative Core of the Frontiers in Congenital Disorders of Glycosylation Consortium is to
facilitate a well-organized, well-executed program and provide responsible time and fiscal management to facilitate
Congenital Disorders of Glycosylation (CDG) research. The Core will also play the lead role in maintaining
continuous communication within the program, supporting relationships across projects and cores.
It will serve as the link to RDCRC program oversight, contact among other clinical and diagnostic sites across the
U.S., and collaboration and resource sharing within Mayo Clinic. The Administrative Core will provide leadership
and collaboration between the Clinical Projects and Cores of the Consortium, establish the RDCRC infrastructure
including the Administrative Directors (Drs. Eva Morava and Gerard T. Berry), project leads, core leads and co-
investigators; provide administrative support to the Pilot and Feasibility and the Career Enhancement Core;
establish the biostatistician at Mayo Clinic who will provide support for protocol development, construction of study
designs, CDG Registries, statistical data analyses, collection of data from the participating sites; and establish and
maintain CDG biobanks and the various omics activities.
It will also ensure the Consortium's mission of reaching clinical and scientific goals in CDGs is achieved; assure
incorporation and participation of Congenital Disorders of Glycosylation specialty clinics at Mayo Clinic, Seattle
Children's Hospital and Children's Hospital of Philadelphia; facilitate investigator trips to relevant Consortium
meetings, coordinate and support RDCRN-wide efforts to develop and monitor best practices for clinical and
research data handling and use, including the use of Common Data Elements (CDEs); maintain a web environment
that renders information on CDGs accessible in a comprehensive way for patients and their families, the general
public, treating physicians and those in-training and interested researchers not in the field.
Lastly, it will facilitate a strong platform for collaboration between CDG-Care and Consortium investigators to
produce a highly productive synergy that increases patient engagement in clinical research; establish and
coordinate monthly web-based or conference calls, 2X a year face-to-face meetings of clinical project and core lead
investigators, CDG-Care and the SC to share experiences, learn from each other, and gather information about
resources and scientific projects; and arrange yearly retreats for all participants of the consortium extended with the
External Advisory Board Coordinate information and communication about Consortium research developments to
patient advocacy groups, clinicians, investigators, the scientific community at large, and the public.
The Administrative Core on the Frontiers in Congenital Disorders of Glycosylation Consortium's impact is such that
centralization o...

## Key facts

- **NIH application ID:** 10480827
- **Project number:** 5U54NS115198-04
- **Recipient organization:** MAYO CLINIC ROCHESTER
- **Principal Investigator:** Eva Morava-Kozicz
- **Activity code:** U54 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2022
- **Award amount:** $248,257
- **Award type:** 5
- **Project period:** 2019-09-15 → 2024-07-31

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/10480827

## Citation

> US National Institutes of Health, RePORTER application 10480827, Admin Core (5U54NS115198-04). Retrieved via AI Analytics 2026-05-23 from https://api.ai-analytics.org/grant/nih/10480827. Licensed CC0.

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