# A Safer Assisted Living: Creating a Toolkit for Person and Family Engagement

> **NIH AHRQ R01** · JOHNS HOPKINS UNIVERSITY · 2021 · $416,139

## Abstract

PROJECT SUMMARY/ABSTRACT
Assisted living (AL), an alternative to nursing homes, provides housing, meals, 24-hour supervision, and, in some
cases, health and supportive services. Unlike other healthcare settings, AL uses a social rather than medical
model of care emphasizing a person-centered approach. However, while AL strives for person-centered care,
resident acuity has been rising (e.g., functional decline; dementia), creating tension between supporting
autonomy and minimizing risks from medication errors, infections, falls, and in cases of dementia, elopement
and injuries. Similarly, the focus on person-centered practices (e.g., aging in place, well-being, quality of life) can
be at odds with safety risks such as injury, elopement, or worsening chronic conditions. Discrepancies between
the goals of residents/family and AL staff may result in disagreements, dissatisfaction with care, unnecessary
treatments or hospital transfers. Thus, the core challenge of AL care lies in balancing person-centeredness with
safety risks. A highly promising method for achieving this balance is person and family engagement (PFE). PFE
refers to the person and family’s desire, ability, and activation as a partner with an individual (e.g., staff or
healthcare provider), team, and/or setting to maximize outcomes and experience of care. Although PFE research
is beginning to address non-hospital settings such as primary care and nursing homes, very little has been
conducted in AL settings. Given the uniqueness of AL, one cannot assume that the approaches applicable to
hospitals will directly apply to AL; therefore, in the proposed research, we will explore how to translate and adapt
existing PFE work to the AL setting and develop a comprehensive toolkit to increase PFE in AL safety. Through
a stakeholder-engaged, mixed methods study we will complete the following aims: AIM 1: Identify common AL
safety problems. We will use structured interviews and surveys to identify AL safety problems (including how
safety risks are balanced with person-centered care factors) and determining strategies to increase PFE in AL
from the perspectives of: a) AL residents and family caregivers; and b) professional stakeholders; AIM 2: Rank
AL safety problems and evaluate existing PFE interventions, tools, and strategies applied to other healthcare
settings for their fit with AL. We will first do a web-based Delphi panel with a stakeholder panel to rank the AL
safety problems and reconcile differences across stakeholder type. Our study team will then evaluate PFE
interventions and tools that may apply to AL. The stakeholder panel will then reconvene to review these
strategies and evaluate the fit with AL; and AIM 3: Develop a testable toolkit to improve PFE in AL safety. Using
web-based focus groups with the AL stakeholder panel from Aim 2, we will match the ranked AL safety problems
with the most promising PFE strategies (from Aim 2), identify new PFE strategies for AL safety, and identify ...

## Key facts

- **NIH application ID:** 10629536
- **Project number:** 7R01HS026473-04
- **Recipient organization:** JOHNS HOPKINS UNIVERSITY
- **Principal Investigator:** Anna Song Beeber
- **Activity code:** R01 (R01, R21, SBIR, etc.)
- **Funding institute:** AHRQ
- **Fiscal year:** 2021
- **Award amount:** $416,139
- **Award type:** 7
- **Project period:** 2019-08-01 → 2024-05-31

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/10629536

## Citation

> US National Institutes of Health, RePORTER application 10629536, A Safer Assisted Living: Creating a Toolkit for Person and Family Engagement (7R01HS026473-04). Retrieved via AI Analytics 2026-05-21 from https://api.ai-analytics.org/grant/nih/10629536. Licensed CC0.

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