# Administrative Supplements for the P30 Cancer Center Support Grants to Enhance Sexual Orientation and Gender Identity (SOGI) Data Collection

> **NIH NIH P30** · UNIVERSITY OF SOUTHERN CALIFORNIA · 2022 · $150,000

## Abstract

Abstract
Compared to heterosexual and cisgender populations, SGM populations face disparities related to cancer
occurrence and outcomes, including barriers in cancer prevention, treatment, and survivorship care, and
significant disparities in cancer risk factors. Despite these disparities, SGM cancer research is hampered by a
lack of sexual orientation and gender identity (SOGI) data collection in clinical settings and in population-based
surveillance data (especially cancer registries), and as a result, incidence, and mortality trends for SGM
populations are difficult to document. The National Academies of Science, Engineering, and Medicine recently
recommended that the NIH adopt standardized and parsimonious practices for collecting data on sex, gender,
and sexual orientation to address these challenges. The USC/Norris Comprehensive Cancer Center (NCCC)
adopted standardized data collection for SOGI during 2018 across its data systems (at the central hospital and
outlying clinics), but those data are collected in optional forms in a “Social/Sexual History” tab, and to date there
has been no effort to determine how complete or representative those data are. NCCC evaluates and treats
cancer patients from Los Angeles County’s safety net hospital (LAC/USC), which also adopted voluntary
collection of SOGI data fields in 2018. Provider training in the existence and use of SOGI data items has been
provided on an ad hoc basis. To evaluate the potential utility of these data in advancing SGM research across
the cancer continuum, we propose the following Specific Aims:
 Aim 1. Study the implementation of standardized SOGI data collection at NCCC
 Aim 2. Assess patient-, provider-, and clinic/organizational-level barriers and facilitators toward
implementation of standardized SOGI data collection by surveying patients who did, and did not, answer SOGI
questions.
 Aim 3. Link LAC/USC and USC/Norris records to the Los Angeles Cancer Surveillance Program (LA’s SEER
Registry) and describe the intersection of patient-reported SOGI data items and Registry-based gender
(Male/Female/Other/Unknown) values, as well as the burden of common cancers among gender minority cancer
patients, comparing incidence, stage of disease, and survival of those patients whose SOGI was misclassified
in the Registry.
 Aim 4. Pilot and evaluate provider training in SOGI data collection.
Our ultimate goal will be to document implementation processes and identify and pilot viable solutions to support
full integration and use of standardized SOGI data collection in the clinical setting to support surveillance and
research. By linking data with the LA SEER registry, we will be able to document the need for including SOGI
data collection in population-based cancer registries and begin to track outcomes for SGM individuals on a
population basis.

## Key facts

- **NIH application ID:** 10641590
- **Project number:** 3P30CA014089-46S2
- **Recipient organization:** UNIVERSITY OF SOUTHERN CALIFORNIA
- **Principal Investigator:** CARYN LERMAN
- **Activity code:** P30 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2022
- **Award amount:** $150,000
- **Award type:** 3
- **Project period:** 1996-12-01 → 2026-11-30

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/10641590

## Citation

> US National Institutes of Health, RePORTER application 10641590, Administrative Supplements for the P30 Cancer Center Support Grants to Enhance Sexual Orientation and Gender Identity (SOGI) Data Collection (3P30CA014089-46S2). Retrieved via AI Analytics 2026-05-27 from https://api.ai-analytics.org/grant/nih/10641590. Licensed CC0.

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