# Dementia IDEAs: An Evidence-based Intervention for Dysphagia to supportthe Unique Needs of AD/ADRD Care Partners

> **NIH NIH R41** · BETTER BRAINS, INC · 2024 · $499,964

## Abstract

PROJECT SUMMARY/ABSTRACT
Among the estimated 11 million care partners who provide care to persons with Alzheimer’s
Disease (AD) and AD-Related Dementias (ADRD), many are tasked with the management of
dysphagia (swallowing difficulty) and they experience higher levels of emotional burden,
isolation, depression, and hopelessness than their counterparts who do not manage dysphagia.
Care partners have the potential to optimize outcomes for people living with AD/ADRD but only
if they are well-supported. Unfortunately, existing interventions focused on dysphagia
management do not address the range of unique needs of AD/ADRD care partners.
To address this important problem - and in response to Funding Opportunity Announcement
PAS-22-197 - we propose to co-design and create Dementia IDEAs (Improving Dysphagia
Education and Actions), an evidence-based intervention for dysphagia management with digital
training content and behavioral nudges designed for AD/ADRD care partners.
In this Phase I project, we will follow the National Institutes of Health (NIH) Stage Model for
Behavioral Intervention Development and we will employ a user-centered design approach to
address the first two stages (Stage 0 and Stage 1A) to assess needs and co-design the
Dementia IDEAs prototype. First, in Stage 0 (Needs Assessment), we will assess the needs of
AD/ADRD care partners who manage dysphagia for people living with AD/ADRD. Next, in
Stage 1A (Participatory Co-design), we will co-design the Dementia IDEAs intervention that will
provide digital content and behavioral nudges to support dysphagia management collaboratively
with care partners and dysphagia care experts.
Our goal is to commercialize the intervention to help care partners anticipate, avert, and
respond to challenges during the course of AD/ADRD and enhance health and well-being. In
particular, we aim to influence AD/ADRD care partners’ knowledge, skills, behavior, and habits
to prevent or mitigate negative outcomes experienced with dysphagia management, to reduce
burden, and to improve care for persons living with AD/ADRD. This Phase 1 project will set the
stage for a Phase II clinical trial to test the effect of Dementia IDEAs on health outcomes for
care partners and persons living with AD/ADRD.

## Key facts

- **NIH application ID:** 10823016
- **Project number:** 1R41AG085909-01
- **Recipient organization:** BETTER BRAINS, INC
- **Principal Investigator:** Nicole E Werner
- **Activity code:** R41 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2024
- **Award amount:** $499,964
- **Award type:** 1
- **Project period:** 2024-02-01 → 2025-08-31

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/10823016

## Citation

> US National Institutes of Health, RePORTER application 10823016, Dementia IDEAs: An Evidence-based Intervention for Dysphagia to supportthe Unique Needs of AD/ADRD Care Partners (1R41AG085909-01). Retrieved via AI Analytics 2026-05-25 from https://api.ai-analytics.org/grant/nih/10823016. Licensed CC0.

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