# Discharge care transitions for patients with dementia: a qualitative study of Hispanic patients' and families' experiences in the ED.

> **NIH NIH R33** · YALE UNIVERSITY · 2023 · $51,885

## Abstract

Project Abstract:
 The older adult population in the United States is becoming increasingly diverse, more are seeking ED-
based care, detection and documentation of dementia is improving, and informal family caregivers are playing
a greater role in navigating the healthcare system, particularly within minoritized populations. Due to these
changes, it is therefore critical to identify the unique challenges minoritized patients with dementia and their
families experience during ED care transitions. Numerous studies have documented differences in dementia
prevalence among racial and ethnic groups in the US and have found that Black and Hispanic/Latinx
populations have a higher risk of dementia compared to White populations. Thus, it is critical to understand the
perspectives of patients and their family members to gain a better understanding of the factors and
relationships influencing ED discharge care transition experiences for underrepresented patients with
dementia.
 This supplement seeks to fill a significant gap in the literature by exploring approaches to ED
discharge care transition experiences for Hispanic patients with dementia. Using participant surveys and
qualitative interviews, the supplement will be guided by the following aims: Research Aim 1: We will explore
how Hispanic patients with dementia, and patient family members approach the ED discharge care decision
process. Specifically, we seek to understand the facilitators and barriers for making patient goal-concordant
care decisions. Research Aim 2: We will explore the perceived ED experiences of persons living with dementia
and their family members after the patients have been discharged. Specifically, we will examine discharge
pathways, perceived communication quality, and perceptions of ED environments. The study design will be a
qualitative exploratory study. Eligible subjects will be recruited from the ED setting and include patients >65
age, with a documented dementia diagnosis, and discharged from the ED. Patients and dyads (patients and
their identified care partner) will be consented and enrolled to complete an in-ED questionnaire and participate
in a subsequent qualitative interview. Results will address gaps in understanding about emergency care
transitions and communication and shared decision-making barriers for dementia patients seen in the ED that
may be underserved and identify as Hispanic/Latino(a). The supplement will provide training opportunities and
experiential research for Ms. Sandoval that will equip and position her well as a strong applicant to doctoral
programs and future investigator.

## Key facts

- **NIH application ID:** 10832878
- **Project number:** 3R33AG069822-03S1
- **Recipient organization:** YALE UNIVERSITY
- **Principal Investigator:** Ula Y Hwang
- **Activity code:** R33 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2023
- **Award amount:** $51,885
- **Award type:** 3
- **Project period:** 2020-09-30 → 2023-09-22

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/10832878

## Citation

> US National Institutes of Health, RePORTER application 10832878, Discharge care transitions for patients with dementia: a qualitative study of Hispanic patients' and families' experiences in the ED. (3R33AG069822-03S1). Retrieved via AI Analytics 2026-05-26 from https://api.ai-analytics.org/grant/nih/10832878. Licensed CC0.

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