# Dementia and Value of Home Time

> **NIH NIH RF1** · DUKE UNIVERSITY · 2024 · $281,750

## Abstract

ABSTRACT
The Emergency Department (ED) is an essential care setting for Veteran persons living with dementia (PLWDs),
with 40% of community-dwelling PLWDs making at least one ED visit per year. One of the most impactful and
costly elements of ED care is the decision to admit a patient to the hospital or discharge them home- the “dispo-
sition” decision. ED providers must balance the risks of unnecessary admissions, such as delirium and functional
decline, against the risks of discharge, which may result in return ED visits and hospitalizations. ED providers
lack best practices to incorporate PLWD and caregiver values and preferences in the disposition decision when
there is no serious illness that clearly requires admission. Shared decision making (SDM) tools can facilitate
complex conversations between patients, caregivers, and ED providers, to ensure that patients and caregivers
are involved in decisions about their care. The research proposed in this application is designed to develop a
shared decision making tool to support ED dispositions that are aligned with PLWD and caregiver goals.
With the support of her mentorship team, this proposal is also intended to support the continued career devel-
opment of Dr. Justine Seidenfeld, an extremely promising emergency medicine physician-scientist, within the
field of emergency care health services research. During this period of support, she will pursue didactic instruc-
tion and further training to 1) advance her skills in methods for conducting research with PLWDs and their
caregivers, 2) learn best practices to design and implement interventions aligned with end-user needs, and 3)
develop skills for development and testing of SDM tools. The expected outcome of this proposal is to construct
and pilot test a SDM tool to support high-quality ED dispositions for PLWDs.
This study employs a sequential design based on the 3-step decision aid development process created by the
International Patient Decision Aid Standards (IPDAS) collaboration. Aims 1 and 2 will address the first “under-
stand user” step through quantitative and qualitative methods. Aim 1 will calculate home time (i.e., days alive
and out of acute and post-acute settings) after an ED visit for a cohort of Veterans with dementia, and identify
Veteran, ED facility, and visit type characteristics that are associated with variation in home time to suggest
groups that may benefit from a customized SDM tool. Aim 2 will use qualitative interviews with Veteran PLWDs,
their caregivers, and ED providers after an ED visit to assess their unmet needs, values, and preferences when
making a disposition decision. To fulfill the “development/refinement” and “assessment” steps of the IPDAS de-
velopment process, Aim 3a will create and iteratively refine a prototype SDM tool with feedback from a multidis-
ciplinary collaborator panel, and Aim 3b will then use a iterative cohort pilot study design to assess the feasibility
and acceptability among PLWDs, ca...

## Key facts

- **NIH application ID:** 10872658
- **Project number:** 3RF1AG072364-01S1
- **Recipient organization:** DUKE UNIVERSITY
- **Principal Investigator:** Courtney Harold Van Houtven
- **Activity code:** RF1 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2024
- **Award amount:** $281,750
- **Award type:** 3
- **Project period:** 2021-09-01 → 2025-08-31

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/10872658

## Citation

> US National Institutes of Health, RePORTER application 10872658, Dementia and Value of Home Time (3RF1AG072364-01S1). Retrieved via AI Analytics 2026-05-25 from https://api.ai-analytics.org/grant/nih/10872658. Licensed CC0.

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