# Human Phenotyping & Recruitment Core

> **NIH NIH P50** · UNIVERSITY OF ROCHESTER · 2024 · $185,438

## Abstract

PROJECT SUMMARY/ABSTRACT 
The University of Rochester Intellectual and Developmental Disabilities Research Center (UR-IDDRC) Human 
Phenotyping and Recruitment (HPR) Core provides investigators with priority access to high quality 
phenotyping and clinical assessment services, along with comprehensive resources for research design 
consultation, subject recruitment, and investigator training. The capabilities provided are central to clinical and 
translational research conducted by IDDRC investigators. The centralized infrastructure and provision of HPR 
services with expert faculty guidance ensures efficient and high quality data ascertainment. The HPR Core is 
supported by dedicated administrative and technical faculty and staff to provide customized, critical 
consultation in the design and implementation of studies involving clinical assessment that spans the range of 
IDD etiologies and clinical manifestations. The HPR Core is comprised of expert faculty and staff who are 
experienced in assessment of individuals with complex neurodevelopmental conditions. Emphasis is placed on 
methods that foster reproducibility, including use of widely-accepted common data elements, validated tools, 
and internal assessments of fidelity and consistency in data acquisition. The HPR Core serves as a key 
component of the integrated UR-IDDRC system that enables translation of pre-clinical discovery into 
meaningful therapies that improves the lives of individuals with IDDs and their families.

## Key facts

- **NIH application ID:** 10873695
- **Project number:** 5P50HD103536-05
- **Recipient organization:** UNIVERSITY OF ROCHESTER
- **Principal Investigator:** Leona Ashley Oakes
- **Activity code:** P50 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2024
- **Award amount:** $185,438
- **Award type:** 5
- **Project period:** 2020-08-01 → 2026-05-31

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/10873695

## Citation

> US National Institutes of Health, RePORTER application 10873695, Human Phenotyping & Recruitment Core (5P50HD103536-05). Retrieved via AI Analytics 2026-05-23 from https://api.ai-analytics.org/grant/nih/10873695. Licensed CC0.

---

*[NIH grants dataset](/datasets/nih-grants) · CC0 1.0*